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In Control of my Fibro: Symptoms tracker, pacing advice and notebook for Fibromyalgia warriors

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The word fibromyalgia means pain (algia), stiffness and tenderness experienced in the muscles (my), joints and tendons / fibrous tissues (fibro) of the body. The main symptom of fibromyalgia is chronic pain in any area of the body although the most common places are the neck and back. This condition is not inflammatory or degenerative therefore it does not cause any damage to the joints and patients may look well despite experiencing severe pain and other symptoms. There is] little training provided to Orthoptists who often see patients with fibromyalgia related eye symptoms. It’s important to go to a legally registered therapist, or one who has a set ethical code and is fully insured.

Professor Mary Mc Dermott said, “if our results are confirmed in trial, these suggest that cocoa, a relatively inexpensive, safe and accessible product, could potentially produce significant improvements in calf muscle health, blood flow and walking performance for PAD patients. Sleeping tablets are not normally recommended, as the body can become tolerant to them, which can lead to the effects wearing off and even addiction. Client stories are provided for informational purposes only and should not be relied upon as medical advice or a guarantee. For those with symptoms of low mood, anxiety or depression as a result of living with chronic pain, may be prescribed antidepressant drugs to help relieve these.

Speak to your GP, pharmacist or healthcare professional if you’re taking medication and you don’t feel its helping. For those reasons, we considered The Fibro Guy had not provided a suitable body of evidence, including a randomised, controlled study on humans which demonstrated a causal link between the exact protocol of treatments and techniques they provided and improvements in the symptoms of chronic pain, fibromyalgia, hypermobility and Ehlers-Danlos syndrome. The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network.

Services aren’t able to be responsive to acute flare ups and have limited capacity to provide ongoing support whilst individuals develop their self-management skills. However, in addition to those elements, some of the guidance documents also mentioned medication as playing a part in a multi-disciplinary approach to managing chronic pain. While a few healthcare professionals reported making a ‘positive’ diagnosis in people with fibromyalgia - seeing it as an opportunity to pause, reset and pursue appropriate management strategies, others considered a fibromyalgia diagnosis of limited utility. Fibro’ has now become a common label for a whole cohort of young people presenting often with a self-diagnosis and a negative mindset about their future capabilities and sadly a negative engagement with non-drug options.The Daily Mail reported on the 15/02/2020 that cocoa may have improved blood flow to calves and improved muscle function. There is good scientific evidence that fibromyalgia results from some form of dysfunction of the nervous system. Developing pathways of care may embed an illness model which does not really help patients long term. The] CCG have not streamlined management of persistent pain effectively; two pain management pathways [are] present within [the] local area; one that is very effective, one that isn’t.

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